Interview with Miss Cola and her son Keyshaun

Meet Keyshaun Antoine Isaiah Bennet.He’s four years old, hyper, mischievous and full of energy. Everyone calls him “KK”. Keyshawn also has Duchenne Muscular Dystrophy.

Duchenne Muscular Dystrophy is a sever disease that deteriorate muscles in the body. People with Duchennes can not produce protein and their muscles eventually waste away. All cases of Duchenne’s are fatal.

“He’s so independent its scary…he likes to play by himself, he likes to be on his own. He has a mind of his own,” testifies his mother Nicola Bennet.

Nicola Bennet is a 21 year-old single mother and one of the Wordsmithz involved in WomenzWordz who goes by the alias “Miss Cola”. She has been studying classical piano and is majoring in classical study theory for the Royal Conservatory of Music at York University. She also is looking towards gaining a social work degree.

“[Keyshaun] runs a lot. There’s an island in my mom’s kitchen and he’ll run laps around it…and when he’s done he’ll say ‘Woo! I’m tired.’”

“KK is just KK.”

Nicola Bennet plans to have a fundraiser in order to purchase Keyshawn a brace that will help stretch out the muscles in his legs and help him walk properly.

“The brace is for the larger calf muscles, [it] stretches out the muscles and he only needs it when he sleeps. Keyshawn’s feet [are] turned outwards instead of straight. The brace keep his feet aligned while he’s still young.”

Keyshaun has a weak immune system that further complicates the situation. Nicola says, “I praise God when he’s not sick.” Nicola gets support from her parents who currently live in Oshawa and her local support: her friends. “I love my friends dearly. They’re not even friends, they’re family.”

Recently Nicola made the decision to not put Keyshaun on steroids as suggested by doctors. “There were way too many side effects.” Side effects of the steroids include stunted growth, late puberty, weight gain, severe mood swings, and cataracts.  “He’s a happy child. He is a real kid and I don’t want that to change.”

The fundraiser is November 12th. There’s going to be a raffle, food, T-shirts for sale and of course there will be Sound and Word: poetry, gospel, rap, and classical piano played by Nicola herself! Come out to this amazing event, support one of our own for a worthy cause. For more info, contact womenwithwordz@gmail.com

Peace and blessings.

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1 Comment (+add yours?)

  1. Trackback: SHORT STORY: Marcy’s Heart « Writing in a Tree

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